Editor:
I am writing to you to thank you
for your publication. I have been searching for a magazine such as yours
for several years to educate myself in the many uses of herbs to maintain
good health and alternative methods for treating illnesses. This education
became especially important to me when my husband was diagnosed with
Cardiomyopathy and required a heart transplant. My first copy of your
magazine was given to me by another subscriber and I was very impressed
with its high standards, professional opinions, documentation of studies,
and down to earth information that I was unable to obtain through health
food store books and magazines. Now that the magazine has been made
available to patients, I hear overtones in your editorials that you
might have to water down the information to meet the level of understanding
for those subscribers. I am not a doctor; however, I subscribed to your
magazine because I needed straightforward information to assist in my
husband's health care. I am not saying that I always understand completely
what I read, but I didn't understand everything I read in the Merck
manual either. Through cross reference I was able to decipher the needed
information in order to cure a problem that doctors in the Seattle area
could not. I strongly urge you not to change the format of the magazine.
I believe that if you lower the standards that you currently have, you
will end up being no different than the magazines I can buy in the health
food stores. Your magazine is outstanding and one of a kind in my opinion.
As stated earlier, my husband, age
51 at the time, was transplanted with a 17 year-old heart. At the time
everyone thought that he was the perfect candidate because he had a
perfect tissue match with the donor and was in fairly stable condition
the day of the transplant. The surgery itself went smoothly, but shortly
after that he developed a very bad itch on his arms. The doctors thought
it was just dry skin and suggested changing soaps. On September 3rd
1992, my husband had a biopsy of the heart and complained of being very
tired and thirsty. A blood draw showed that he had a blood sugar level
of 1,345! The doctors were surprised that he was awake and able to carry
on a conversation. He was diagnosed as having CMV virus and diabetes.
He was put on heavy medication to combat the virus and was started on
a sugar-free diet. He was in the hospital for over a month and when
we finally returned home every food source in the house was converted
to accommodate a diabetics needs. That is when the real trouble began.
Shortly thereafter my husband began suffering from gastrointestinal
trouble. Diarrhea, gas, bloating, and upset stomach. The itching became
so bad that it covered his entire body and he was literally scratching
himself to the point of bloodshed. His bilirubin was climbing rapidly
and when it shot up to 8.5 the doctors were discussing a liver transplant.
He had no history of drug or alcohol abuse and no family history of
liver trouble. The doctors tested for everything. All the results were
perfect. They even performed a corn test where my husband had to eat
a whole can of corn and they timed how long it took for the corn to
show up in his stools. He passed this scientific test as well.
For some unknown reason, his liver
was no longer producing bile. With the continued diarrhea, all of the
antirejection drugs were at extremely low and dangerous levels. Rejection
of the new heart was constant and he had to be treated with high levels
of steroids to compensate for the low cyclosporine levels. All of us
were confused and frustrated. My husband had been hospitalized with
numerous staph infections and even contracted clostridium as a result
of eating too much hospital food. That's when I went to Dr. Matchett
and bought a Merck manual. I began reading about hepatic failures
and although many of the words were foreign to me, I was soon able to
understand the terminology that the doctors were throwing at me. This
new knowledge gave me the confidence to discuss my husband's condition
on a more even level with the doctors. Finally one late night my prayers
were answered. I was determined to read the whole manual from front
to back if that was what it took and I turned to the back of the book
and began reading a chart on liver conditions. I located the symptoms
that were similar to my husbands and the solution was very clear ...
reduce intake of phenylalanine. I jumped off the couch and grabbed up
a packet of Equal from the kitchen. In comparing the words in
the book to the packet in my hand I realized that my husband's liver
condition was linked to the ingredients found in Equal and every
diet food in the house.
Within two months my husband's bilirubin
was down to 3.0 and the itching was gone. The doctors were still not
convinced that it was the sugar-substitute products that was causing
the liver problem. They had taken him off of Imuran and boosted the
steroids to keep him from rejecting the heart. Imuran can have a bad
effect on the liver. They were convinced that he was regaining his health
because of the absence of Imuran, not the phenylalanine. I was battling
with them and gave orders that if he was hospitalized for any reason
that he was not to be put on a sugar-free diet. They agreed. I also
told them that my husband was allergic to milk and that I was eliminating
all cows milk products from his diet. They were concerned that he would
not be getting enough calcium in his diet and suggested that I buy him
calcium supplements. I selected a calcium that was chelated and would
assist in fat absorption. It had all the bells and whistles, so to speak.
I was so proud of myself. My husband was getting better and I had found
the solution. My ego trip was short-lived. One month almost to the day,
my husband was in bad shape again. His bilirubin was back up to 8.5
and climbing. The doctors were calling for more tests and I felt like
the nightmare was starting all over again. I was not to be defeated.
One night I sat down and reviewed all of the notes that I had written
down in my transplant book. I kept asking myself, what was different?
what changes had we made in the medicines? None. Then it hit me. The
only change I had made in the last month was that I started him on the
new calcium. I went into the kitchen and grabbed up the bottle and carefully
began reading off all of the ingredients. There in the fine print was
the word aspartame. I considered this to be kind of a blind study. My
husband didn't know that it was in the calcium, but his body sure did.
I was later told that it is often used as a binding agent. Since that
time my husband has continued to improve. His liver function is perfect,
he is back on the Imuran, and off of steroids completely (not without
suffering from all side effects from the drug first!) In my husband's
medical folder it states the wife says that the husband is allergic
to Phenylalanine. Laughingly I said to a medical person, I don't care
how you have written it, just make sure you follow it.
The last story that I will share
with you is another one that our Group Health doctor will verify. As
a result of numerous infections treated with high-powered antibiotics
my husband began losing his fingernails. It first started with a white,
milky patch underneath the nail that quickly spread back to the quick,
lifting the nail off the bed of the finger until it eventually fell
off. With a history of staph infections and slow healing process, the
doctors were concerned about infection. One nail after another became
infected by this fungus and quickly the white, milky patch was replaced
with a bright green moss that could actually be scraped off. We watched
carefully as five fingernails fell off and now several toes were showing
signs of problems.
The only treatment that the doctors
could offer was Ketoconazole, which was out of the question because
it is very damaging to the liver and interferes with Cyclosporine levels.
They offered their apologies and sent us on our way with the bleak news
that he would never be able to grow nails again or if he did it would
take years and they would more than likely be deformed. Once again I
began my quest for a cure and was surprised with what I came up with.
One day my father called me and said that he just bought me a book called
The Vinegar Book. I began reading it and was excited about the
prospect of helping to cure my husband's fingernail problem by balancing
his pH factor. It would stand to reason that he would have a pH imbalance
with all of the numerous antibiotic treatments that were prescribed.
Not being a pickle eater, he threw a fit about drinking vinegar! Not
giving up the battle, I bought a bottle of raw, unpasteurized vinegar
with lots of mother in the bottom of it, mixed one tablespoon of vinegar
with a tablespoon of honey in a cup of water and after the first glass
he was hooked. He stuck with this treatment of drinking only one glass
a day for over 1 ½ months. Within that time he grew brand new nails
and the fungus disappeared under the other affected nails. Upon returning
to the doctor's office after just a month and a half, my husband proudly
showed the doctor his new nails. His exact words were, had I not seen
your nails just a month ago, I would never believe this to be true.
He quickly began asking questions as to what we had been up to and where
I obtained information about the vinegar. He actually bought the book
for himself and also for the Group Health library. My husband and I
strongly believe that the vinegar has helped him to regain strength
in his bones and muscles that suffered so much during the heavy steroid
treatments. He still has three compression fractures, as a result of
the steroids, that give him trouble, but certainly not like it was.
I have documentation of my husband's
nails from two Group Health doctors and would be willing to share this
with your readers if you think that someone out there would benefit
from the knowledge that we have gained through our crisis. Prior to
my husband's transplant, we were just a normal couple surviving day
to day without any troubles. Suddenly we were faced with a very scary
world of doctors and hospitals. By researching and gaining knowledge
about alternative methods and medicines we have become stronger individuals
who no longer fear doctors or leave all the decisions about our health
care in their hands. We have learned to research, question, and document
information that is given to us. Not all doctors appreciate us asking
questions about whether or not a procedure is necessary or if there
are other options to consider. However, we are happier when we
take an active role in our health.
Katie Taylor